Meet Noel! We love this little girl! She was born on Friday morning and already has a remarkable story. Let me start at the beginning.
This story starts like many others. Boy meets girl. Boy asks girl out. Boy and girl fall in love and they get married. Pretty soon afterwards, they find out they are expecting. It’s a beautiful story. One that we tell and re-tell and re-tell in books and movies. Love.
We all enjoy a good love story. Yep, even you guys out there! Admit it.
This is where the story takes a different turn in the life of this couple. The ultrasound reveals that their precious little one has a fight ahead of her. Already, before she is even born, their little girl is facing some huge hurdles. She is diagnosed with Hypoplastic left heart syndrome. I’m not a doctor but this basically means that the left ventricle of her heart was, and is, severely underdeveloped. This means that the blood cannot be pumped properly from that side to the lungs and organs. This leaves the right ventricle to pump blood to both lungs. This is not something that the heart can keep up for long. Also, an amniocentesis shows that Noel has a duplicate chromosome 3. I don’t know all the details but it’s not a good thing. She would require many surgeries and a heart transplant would be necessary. However, because of the extra chromosome, she would not be eligible to receive one.
I’ve never been in these shoes, but I can imagine that this would be painful, hard and worrisome news for any couple. Caleb and Alex, however, are not just any couple. I’m sure they had their times of concern and worry but they chose to stand up and say “For God, anything is possible. We will believe in a miracle.” This is the banner waved over Noel since the news was known. So, we prayed and believed with this amazing couple as they awaited the due date of their baby girl.
Friday morning: Noel arrives!! At 4 pounds 1 ounce, we finally could put a face to this beautiful little girl we’d been praying for, and we are already in love with her!
The doctors had told Caleb and Alex to expect no more than a few hours with their precious Noel. Indeed, she came out more purple than usual due to the lack of oxygen. She breathed, she fought to do so, but she did it. Each breath in and out. Each of us breathing in and out. Waiting. Praying. Hoping. Crying. Laughing. Photos coming from the hospital room. The very first family photo. A very sweet and special moment where Noel is baptised by her Grandfather. Family surrounding her with love. Hours pass.
At this point I’m practically glued to my computer (since Noel and her family are 2,300km away). Updates come frequently and I’m afraid to miss even a single one. Her vitals decline and then… silence. Nothing is posted and nothing is said. I’m going stir-crazy but I spend each breath praying. I call and text and message everyone I can think of to get prayer going.
Finally, news arrives. It’s been 8 hours and the doctors are amazed that she’s fighting. A miracle! She’s eating and just generally being a baby. Her breathing begins to improve a little and her heart-rate steadies. Photo’s flow and we watch this beautiful little life being held and cuddled by those who love her so much. Updates continue. Hours pass. Hours that the doctors didn’t imagine she would have, but that we all believed in. Around the world, people pray for Noel. Hearts are touched by her story, by the faith shown by those who love her… by the miracle that she is! An update two nights ago from Alex said:
“Caleb and I would like to say THANK YOU for all your love and prayers. Our miracle Noel is a fighter! Her heart rate and breathing are at normal rate. Praise God! He is our healer, Jehovah Rapha. Please keep praying with us that she will be a testimony of faith, prayers, and healing.”
Heart rate and breathing are NORMAL! Another miracle! Woke up yesterday morning to a new update which said:
“Our Noel had a good night last night. The Lord is with her – her Rock and Her Deliverer. We do trust in Him and Praise His glorious name. Caleb and Alex have requested another Echo Cardiogram. Please pray that The Lord continues to heal her heart and that He would make right this chromosome defect. She had an extra chromosome 3 that we need the Lord to remove. Her cerebellum needs to become whole because it is in two parts. Please continue to pray for a miracle!!”
We rejoice. We pray. We trust. We hope and we wait for news again. When it arrives in the afternoon, it’s not what we want to hear.
“Another echocardiogram today showed why she has survived this long. There is a small hole in her heart that is allowing the blood to circulate regardless of the other issues. It is only a matter of time for the hole to close resulting in her passing away.
Unfortunately, due to her extensive issues, heart surgery (or any other type of intervention) is not a viable option. Caleb and Alex have elected for out-patient care at Caleb’s parents house. Baby Noel will be on hospice care around many loving family members.”
God is love. God had this precious, beautiful baby girl in His heart. God brought Caleb and Alex together and blessed their union. He knew Noel before He created her in the womb. He knew the struggles that she would have. He knows what the minutes, hours and days to come hold. He has sustained her for 3 days and I know that He can sustain her for the next 100 years. I know He can. I don’t know what He has planned, but I will continue to pray for Him to heal Noel until I cannot pray any more. I refuse to let Satan even get a word in edgewise. I will stay on my knees before the throne of the One who created Noel. He is the one who numbers her days. He loves her. Noel is a beautiful testament that our God is love. This all began with love and here, in the middle, there is love. Wait, let me try that another way… This all began with God and here, in the middle, there is God.
From the United States to Canada to Malaysia to England, we are believing in faith and connected in prayer. Noel has already touched so many lives! Won’t you join us in praying for this miracle baby? I believe that God can heal and I will continue to pray, with Caleb and Alex and their family, that He does!
Caleb’s aunt and uncle have set up a foundation for Caleb and Alex, to help relieve some of the stress of finances. I am including the information for anyone who can help out this beautiful family. We continue to ask for prayer because that is so important to us (and more than enough in Caleb and Alex’s eyes)! If you can help out, even with a few dollars, please click on the green link below. We are so grateful for anything you can give!! We want to continue to bless this family!! Thank you so much!
Caleb, Alex and Noel fund!<—————————– 🙂
Here are the other posts for Noel:
Noel at home